Ella Balasa, a patient advocate and consultant, shares her personal journey living with cystic fibrosis (CF) and how it inspired her to become an advocate for patient engagement in healthcare. Balasa discusses the challenges she faced growing up with CF, including frequent hospitalizations, daily treatments, and feeling different from her peers. She emphasizes the importance of incorporating the patient perspective into research and drug development processes. Balasa highlights her role as a professional patient voice, contributing to clinical trial development, research prioritization, and patient engagement initiatives. She stresses the value of collaboration between patients, researchers, physicians, and pharmaceutical companies to improve disease outcomes and advance.
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